Monday, December 31, 2012

40 weeks a few days late

We are still here!  I figured it's time to blog since you are all texting that you are worried about us...haha!  B was 40 weeks last Thursday.  Not too much has happened in the past week.  Here's a little recap:

* H started physical therapy.  For now he will go 3 days a week.  He is doing really well and is semi mobile again.  The first 3 days after surgery were pretty rough.  He will be on crutches for another 2-3 weeks and then have 1 crutch for a few weeks.  Other than him tiring easily, he is good!
* B is up to 10lb-4oz.  She did weigh more, but the spit up has been keeping her from gaining for a few days.  I am beyond frustrated with not having a solution at this point.  We don't even have an appointment to see a doc about it yet. 
* Part of the reason, besides taking care of 2 kiddos, that I haven't blogged is that we are getting our house ready to sell.  We thought it would take a few days, but everything takes us longer.  It's a big project!
* We had a very nice Christmas.  We stayed home and had my parents over.  

I do have 2 exciting things to share:
1.  Battley is getting her own ROOM!  It's been a work in progress for a few weeks.  I kept Hayden's old crib in storage at my parents, but we lost the hardware.  It took a few trips to the hardware store and the Play Pen to make it work, but Battley has her own bed now!!!  She hasn't slept in it yet, but it is ready for her.  We probably won't move her until she doesn't have her NG tube anymore.  We are still working on the room...I'll work on a pic to post of the progress.
2.  Battley laughed!  She has been doing it for a few days.  I didn't notice at first b/c it was so subtle. Remember she just got strong enough to cough and scream...and boy can she scream now.  It's so nice to hear believe it or not.  But the laugh...oh my goodness!!!!!!!  It is something I never dreamed we would get to hear from her!  It's so cute!

Current projects:
* getting the house ready to sell...currently trying to figure out what color paint buckets contain the paint we need for the hallway and trim so we can have more mixed
* rehabbing H's knee...he has exercises he does 4x per day that he needs help with
* trying to figure out how to start therapy with Battley...another frustration b/c this isn't easily done or else I just can't figure it out
* finishing B's room
* finishing my Christmas shopping...that's right...with everything going on I didn't have enough time to get it all complete!  Some folks are getting happy new year gifts!  or happy mid-jan gifts!  haha!

C

Thursday, December 20, 2012

Update

We are home.  The doc was pleased with everything.   H was super loopy in recovery...I made some videos!  He is resting now.  Thank you all for your prayers.
C

39 weeks

B is going to celebrate today with her daddy.  H and I are off this morning for his surgery.  I'll do my best to post tonight.  

Here's the pre-surgery recap though:
wings for dinner the night before...we actually went to the restaurant and ate them!
Adam woke us all up at 5am because the wind was blowing so hard he thought there was a tornado.  We spent 5 minutes in the laundry room and then all went back to bed because we were too tired!

C

Friday, December 14, 2012

Surgery Update

H's MRI was today.  It showed a torn ACL like we thought and NO other torn ligaments...yay!  He is scheduled for surgery next Thursday.

B has a doc appt next Monday.  It's just an appointment to meet with the doc and talk about what to do next, appts to make, docs to see, etc

Happy Weekend,
C

Thursday, December 13, 2012

38 weeks

My gal is 38 weeks old today!  I am so HAPPY to report that she is sleeping through the night again! We have had 3 or 4 nights of her sleeping most of the night.  We have also cut out her 11pm feeding, so that helps us get to bed at a decent hour.

Thank you all so much for your kind words and prayers for my speaking gig yesterday!  It was a blessing for me to be asked to do that and I very much so enjoyed hearing the other mommas' stories.  I felt a little out of it with everything going on around here, but it worked out well.

Have you ever had one of those days where you just get angry?  I had a night like that last night.  I got out for a few minutes to do basically start Christmas shopping.  I went to put my phone down and it bounced off the console and landed in a cup of water!  Really?!?!  Detour to the phone store...I have to get a new phone.  
Timmy: Mrs Terhune, I see you are eligible for a 99cent upgrade to an iPhone 4.
Me: Super!  Let's do it.
Timmy: Well, Mrs Terhune, unfortunately we are out of the iPhone 4!  I can ship you one that will arrive to you in 4-5 business days OR you can purchase an iPhone 4s for only 99dollars!  Plus the 40 dollar activation fee and the ...(I didn't hear this part because my ears were probably pouring blood right out onto their floor)...FEE (I heard this word)!
Me: Ahhhhhhhhhhhhhh!  

I really didn't do that, but I really wanted to scream!  Normally I can talk my way into a discount, but it wasn't happening for me last night!  

Luckily today is a NEW day...a day I can wake up and sing Happy Birthday to my sweet princess...a day I can count my many blessings!  Thank you, Lord, for new days!

MRI tomorrow on H's knee...praying for good news!  And we are still praying for guidance on what to do about this house.

C

Monday, December 10, 2012

Monday update

I just have a few quick updates:

We planned to spend our weekend getting the house ready to put on the market.  We haven't decided that that is the right thing to do just yet, but all our projects happen on weekends and we only have 2 of those days a week.  H had a soccer tournament this weekend also...so we did what we could between games.  Unfortunately Sunday morning he hurt his knee during the first game.  He laid on the ground in pain.  That is not like him so I knew he was hurt.  

We made our way to the local 24 hour clinic and on the way were reminded that it is FLU season.  If you have ever seen us in public with Battley, you know we have a routine.  One baby toucher...one (everything else) toucher...no cross contamination.  We use antibacterial wipes, carry our own pens to sign things, and keep B in her stroller so as to try our best to protect her.  I don't touch anything with my hands and then touch her...it's even more interesting when it's just she and I in public.  

When I went to check H in to get his knee seen about, the wonderful ladies understood that I didn't want to expose B (she was home with her daddy, but expose her through us) to all the sick germs.  The waiting room was FULL!  They were so kind to let us go right back and we were in and out in less than an hour!  I shared the blog with them, so if you are reading...THANK YOU!

Then Battley's awesome friend MA got us in this morning at 7:45 to see the orthopedic doc!  She even met us in the waiting room and stayed with us until we got back in the car.  Huge help because it was pouring rain!  Thank you, MA!!

All that to say that H is on the schedule for surgery for a torn ACL next week...boo!  Any prayers you can say for him would be greatly appreciated!  Not only is his knee hurting, but having an injury is hard on a teenage boy that is as active as he likes to be.  He is already counting the sports seasons he will miss.  

It's been an interesting day of helping him instead of having him to help around...he is planning to milk this for all he can.  He's already had wings (his fave meal) one time.

Now, another prayer request and something I just want to share:
I have been asked to share Battley's story at UMC (local university hospital) this week.  The point of the meeting is not to hear Battley's story, but to use her story and a few others as an open discussion starter.  I am extremely honored to be asked.  The topic is HOPE.  My hope in this is that my words be inspiring and helpful to someone listening.  I have to admit that I am also pretty pumped about any chance to share that it IS possible for a baby with T18 to be born alive and enjoy life.  So often people get their hope (or lack of hope) from statistics.  We found our hope in God and through my awesome T18 momma friends.  

Gotta run...lots to do!

Here is a funny pic I will leave you with:
Notice the bones from wings...yeah, he never leaves anything on the bones!  The sheet over the sofa is because he just played a soccer game and was sweaty!  and do you like his "tv tray"?  It contains ornaments for a tree I def decided today is NOT going up this year.  If you're wondering what the spray bottle is for...that's for keeping Mac (pug) from putting his hands on the sofa.  But isn't that love soooo sweet!!!  Love them!

C

Friday, December 7, 2012

37 weeks

Here we are on Friday again...I always shoot for a post on B's weekly birthday, but we see that it doesn't happen often.  One day I will just accept that and stop all the apologies...maybe...ha!

What a week we have had!  We are still a bit shocked about the news we heard last week.  Since we spent such a long time expecting to lose B and enjoying each moment we have had with her, we never made plans for more of a future than a few days or weeks at a time.  We have realized this past week that we put a LOT of things on the back burner and have a lot to do now.  The first things on the list are to figure out what to do with our jobs (we are both employed full time even though I handle all my business from the home office) and our house.  We are currently praying like mad for the Lord's direction on both fronts.  Please pray for us to hear God's direction for these things. 

So...Miss Battley:

* weighs 9lb-13oz...her weight is fluctuating a bit with our new feeding schedule but trending upwards so we are happy

* is fed 5 times a day now instead of 6...this may be super boring to read a list but wanted to share:
7am: 105ml of 24calorie per serving Similac formula (this is between 3 and 4 ounces) and a dose of Lasiks, Digoxin, Phenobarbital, Prilosec, and Milk of Magnesia...feeding her always takes around 2 hours
11am: 105ml of formula and a dose of Miralax
3pm: 105ml of formula, a dose of Miralax, and a dose of Milk of Magnesia
7pm: 105ml of formula and doses of Digoxin and Phenobarbital 
9pm: dose of Milk of Magnesia
11pm: 60ml of formula (this we run slowly over 3-4 hours if she is sleeping and don't need to have her sitting up for)
and to top it off we throw in some gas drops along the way as needed

* wears size 2 diapers and 3months clothes...all the preemie clothes are officially put away

* loves to be snuggled, talked to, read to, and sung to

* still digs music...toddler Pandora

* loves bath time

* is working so hard with her arms to get them to do what she wants them to do.  Hopefully we will be able to begin some form of therapy with her soon!

C




Saturday, December 1, 2012

EKG pics

Pics from her EKG at 6 days old and then from this week...she's 9lb-11.5oz now!
She was checking out the lady with the stickers.

C