Wednesday

Adam and I took Battley to see our #1 doc on Monday.  We had some tough conversation.  We did 2 things after that appt.  We started her on decadron (a steroid) for 5 days and added a humidifier to her oxygen concentrator.  By Monday night she was shaking toys...steroids are powerful!  Then we had a few setbacks and a bad night.  

Today is Wednesday....I think.  She rested well last night and was awake some this morning.  Other than a jolt of energy the steroids give her, she has been very lethargic and mostly sleeping for days.  She also hasn't been able to have much milk.  She's had plenty of pedialyte though.

Today I hope to keep her stomach feeling good.  We are using carafate and mylanta.  Also to get some milk in her.  We have been able to wean her oxygen down to a more normal setting. Maybe we can do another wean later today or tomorrow.  

She seems to be improving.  I am hopeful that that is the case at least.  

Thank you all for your prayers.

You know how people always say, "well let me know if I can do anything to help"...well I have certainly done so this week.  So beware...if you say this to me I will have a chore for you!  The help has been wonderful and given me time to pay some much needed attention to jm also.  My aunt stayed with us yesterday, and he and I even walked around the block once.  Before that I had only been outside twice in the past week to load and unload going to the doctor's office.  

Keep the wonderful healing prayers coming.  She needs rest and this stomach issue to feel better.  

C