We got home around 7pm last night and had a great night!
B is still having some pain. She has a very large incision from the Nissen. We are managing with Tylenol and Motrin.
The new pump was delivered yesterday about 30mins before we left. I am still reading the instruction manual, but it seems to be easy to understand. A reader named Tracy emailed to let me know that the pump we wanted wasn't discontinued...it just has a new distributor. I am so thankful she did email! This pump fits so much better with our lifestyle.
We are working up to a normal feeding schedule. B seems to be very hungry this morning and handling the feedings well.
When we got home we bathed her and fed her and she went right to sleep. This morning we are on our regular schedule so far! Yay!
Adam said this morning that it was amazing we only stayed 5 days in the hospital when we had her and 6 for this!
I do have lots of new things to figure out. The gtube, since it is directly to the stomach, works differently than the ng tube. You have to be careful not to spill milk everywhere. Adam has already spilled medicine all over the bed. The nurses all told us we would spill it all over a few times before we got in a habit of doing it the right way...they called it feeding the bed. ha!
The past week was a wild ride. We never imagined we would have to give B over to someone and let them operate on her. But we certainly couldn't have dreamed we would be blessed with all this time. It's hard to hand your child over to someone for something risky. I could see the pain in so many parents' eyes in the hospital. It was hard with B, it was hard with H, it was even hard when H had tubes when he was 2. We never had "that feeling" about doing the Nissen...you know, the peace that God gives with decisions. We just had to trust that we would have known not to do it if we weren't supposed to.
Thank you all so much for your prayers for our family. They got us through a hard week. We appreciate all of you!
C
I always read your blog!!! I love keeping up with your latest news! I'm praying for you all too!!!
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