Nanny 360

I have posted about this company before, but I am going to do it again because I LOVE their product and their customer service.

Way back when Miss B was a few weeks old we ran across this site online: www.nanny360.com

We ordered a camera for the car so that I can drive and see her since she sits in the back seat in a rear facing car seat.  Remember how we tried every mirror made and none of them worked well enough?  This was during the time Adam needed to go back to work so I wasn't going to have a back seat baby watcher any more.  For most kiddos you just toss a mirror up there and go, but NOT for Miss Priss...remember how she used to spit up before her surgery (always the fear of aspiration that could lead to pneumonia) and how she used to stop breathing?  NOT things you want to find out about when you arrive at your destination!  Basically I was going to have to stay at home with her all the time if I didn't find a way to keep an eye on her in the car.

This product has literally been a lifesaver for us.  We wouldn't be able to go to doc appts, therapy, anywhere!  And let's not even get in to the emotional side of what this product has done for me...I am not sure I would survive staying home all the time...I like all you people too much! 

So why do I post again???  Mr Baby Terhune will soon be riding beside his big sister!  This company has amazed us with their awesome customer service!  We are now the proud owners of a 2 camera system so I can see them both!  Woo-hoo!

And just a few of my favorite parts of the camera for us:
if it's raining I can turn the volume up and pay closer attention to the road because I can hear her breathing
it's COLOR during the day...great for making sure your baby isn't turning colors (this isn't a joke...it's a real thing that used to be a major issue for us)
it works in the dark when even a back seat baby watcher can't see!

This camera works inside your home or in your car...HIGHLY RECOMMENDED by the Terhunes!

C

No News

It's that time again...I'm getting calls and texts saying I haven't blogged in too long.  I have NO NEWS...none!

Let me invent some:

* coconut oil is going GREAT

* therapy is good

* Battley is feeling great

* 7 weeks until baby

That's all I've got!

C

Clips

A few short videos of B and updates on Coconut Oil...

having a bite of applesauce in Speech Therapy

and doing some more reaching on her own

 

We have been doing the coconut oil for a week and a half now.  I can already tell a HUGE difference in the amount of time Battley will spend focused on one thing now.  Friday I will increase the dose to 1/2tsp per day.

C

Coconut Oil

After doing some research and consulting with all our docs, we have decided to try giving B a dose of Coconut Oil each day.  Some of our T18 friends have tried this and have had great results with more advanced talking/babbling than they have had before.  There doesn't seem to be any actual research supporting this, but there is a lot of chit chat about using coconut oil with people who have Alzheimer's.  Here is a link to Rebekah's page that talks all about their experience with it: Rebekah

We gave B her first dose on Friday.  It's just an experiment...we shall see!

Here is a quick video of B I took today at the DMV.  She is working so hard on her reaching!  A few weeks ago she wouldn't lift an arm to do this!

What were we doing at the DMV??  H got his driver's permit!!

And a little pic of B checking out her bro...the love!

We have an appt early tomorrow morning for a swallow study.  They will feed B some special food that will show on an x-ray and watch to see what she does with it.  Our hope is that she swallows it and it goes down the right way with no choking or gagging.  If this happens we will work on some more bites of food in speech therapy.  I wish I could go in with her, but since I'm a preggo I can't.

C

Some Exciting News

Battley Cate and I just got home from the doc office.  I think it is finally safe to say that she is over whatever illness she had.  Thank you for your prayers for her!  She is cutting a new tooth which I'm sure doesn't feel good, but overall she is feeling much better!

I haven't given a good therapy update in a bit.  We are working on reaching, some signs, recognizing certain objects, identifying them when asked, and overall muscle tone and control.  The pic I will post below was taken yesterday at Physical Therapy.  Notice where the therapist's hands are...one on the floor and one poking her in the neck to keep it tilted upright.  Battley is doing SO well with learning to sit up...don't get me wrong...we have a ways to go, but I could not be more proud of how hard she works to do these things!  Sitting up is something that I never dreamed would be in her future!  I really just hoped for her to be able to hold her own head up.  I do hope now that she can learn to sit on her own and someday become mobile in whatever way works for her!  She really does amaze me!

On to some other exciting news:

We have a local school for children ages birth-6 years who have special learning needs.  I, on the advice of B's therapists, put her on the waiting list about 6 months ago.  She was #37...which I was told could be a 3 year wait.

We received a note in the mail last week that she is now #19!  Truthfully I do not think I am ready for her to go to school (it's just a morning program), but that doesn't mean anything really because I'm not in the driver's seat here!  My prayer is for us to make the decision if the time comes that is in B's best interest.  Did I mention they are working to add another class?  This would probably mean she moves up on the list faster.

Why do I share all this "not really news yet" news?  So you can pray with us that IF this is the right thing for B that it fall into place at the right time.  Thank you!

C

Confirmed Good News!!

Battley's echo is looking good!  This means there is no infection in the heart and her pulmonary hypertension is still keeping her out of heart failure!  Woo-hoo!

The blood culture is also negative...yay!

Her white blood cell count numbers taken Monday are still elevated but down from what they were.  We will recheck them next week unless she spikes a fever before then.

This illness looks like one of those that will go down in the books as an unknown...oh well!

Thank you all for your prayers for her!  She still doesn't feel 100%, but seems to be feeling a little better each day.

C

Good News

I don't have official good news from the doctor just yet, but it seems like B is feeling better!  She hasn't had a fever in over 24 hours!

We had a little change of plans yesterday.  Our pediatrician was out so we went straight to the Children's Hospital where our Palliative Care doc sees patients.  His amazing nurse was able to draw blood on the first stick!  So that is off for a blood count check and a blood culture.  Hopefully we should know some results later today.  Then we hung around for a while until we could get in for an echo.  Our doc didn't read it right away so we will hear official results later today.  The lady who did the ultrasound didn't see any infection and the doc who gave it a glance (not our regular doc) didn't see any obvious signs! 

So now I have to brag on my gal...we have read and been told that she may not know the world is going on around her...well that is so NOT the case obviously!  She is always showing me just how smart she is and yesterday was a good one!  B has literally been stuck for a shot, finger prick, or to draw blood over 10 times in a little over a week.  As soon as I laid her on the table in the exam room she knew what was coming and started screaming!  What kind of sicko is delighted to hear her baby screaming...ME!  Also remember she couldn't scream when she was born...didn't have the strength for it...so we still get a kick out of it for that reason too.  She knew exactly what was coming.  She did it again in the echo room until I told her we weren't going to stick her.  Ugh...love her!

I will try to post an update as soon as I hear something.

C