Friday, May 17, 2013

On the mend

My poor girl has been so sick.  We took her to the pediatrician last week and put her on an antibiotic. She apparently got whatever H and I had that turned into some type of upper respiratory infection.  By last Friday she could barely breathe.  She spent most of the weekend screaming and had so much trouble resting.  We spent the weekend contemplating a trip to the ER...which we never want to do.  Our wonderful neighbor saw that B was sick and brought over a nebulizer on Sunday night.  That thing made a huge difference immediately and she was able to rest.  

After a trip to the doc on Monday morning we found out there is no sign of pneumonia!  We borrowed an oxygen saturation monitor from a friend.  B just isn't able to get enough oxygen into her system just yet so we have her on .25L of oxygen.  She is also doing breathing treatments every 4 hours.  

I think yesterday was her day.  She finally felt better and I got a few smiles.  She did run a fever, but I can tell she is on the mend!

We have SO many things to be thankful for, but after lugging around an oxygen tank (just think...if you move to a different room you have to take the machine with you!) I have a new respect for all our blessings.  

We have an oxygen concentrator for the house...this is just a big machine that plugs into the wall and uses oxygen from the room.  It has a smaller metal box that goes with it (pediatric flow meter) since B is tiny and needs a tiny amount of O2.  Then we have very small oxygen tanks for the car...we have never used these tanks before this week but are super thankful we had them...if we didn't we wouldn't be able to leave the house.

We had 2 other doc appts this week besides the one Monday.  We saw an ear, nose, and throat news from that.  We also saw B's cardiologist.  Her heart looks the same.  She is still not in heart failure and has pulmonary hypertension!  Yay!  

Thank you for all your prayers...we appreciate you all so much!


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