Schedule

Dare I say we are on a schedule? The past few days have spoiled us. Battley has slept 3 nights in a row now. All night! Then during the day she has her nap times figured out. Adam and I talked about trying to get her to stay awake more during the day so she would sleep at night but we didn't do it...she just figured her own thing out and it works for us!

Tuesdays and Fridays are the days her hospice nurse comes. Her name is Rosa. She comes to see if we have any questions...which we always do...and then we normally chat for a few about what's been going on. She is super supportive and just a wonderful person to have for info. She has loved and cared for 4 other gals with T18. Have you ever met someone who is like an onion...the more you talk to them, the more you find out about their life and how fascinating it is? That's Rosa!

Today we aren't doing much. Tomorrow we have our doctors appointments. It will be a busy day.

I'm working on a way to blog about what we do during the day...

Here's B sleeping in my lap this morning:



C