I have some good news, some disappointing news, and a major prayer request.
I made it Friday without all day help! I had some good help, but not all day long...and it was okay.
Battley had awful bile Thursday and Friday. We tried a new med starting Friday night. Erythromycin. It helped immediately. She was able to have her milk Saturday and Sunday with no bile, no screaming, and no bubbles!
Because of that she got good rest and we were able to wean some oxygen settings. She is now down at a reasonable level and I can leave the house with her if needed!
Not so good news:
The bubbles, bile, and screaming were back last night. Because of that she didn't get good rest and her breathing isn't as good this morning. Her sats haven't been amazing.
We are seeing a new GI doc on Wednesday. Please pray that he will take time to fully understand what has been going on for the past year, have some answers for us, and we will see immediate results from our decisions.
Battley is one tough girl. It's so hard to see her in pain and not be able to help much. Her respiratory infection seems to be much better. She just needs more rest.
I could NOT have done last week without help. We had meals, help with chauffeuring H, a house cleaner, a laundry helper, a few baby rockers, a wal-mart runner, an errand runner, and daytime helpers.
My friend Sam stayed a day, my mom stayed a day, and my Aunt stayed 2 days!!!
Then on top of all that, you guys are praying for us. Thank you! We are so blessed and humbled by your love for us.